September is Brain Aneurysm Awareness Month in the United States, and the AVM Awareness Project is looking forward to having a month filled with awareness and information bombardment on our Facebook Page.

Please join us in our effort to spread awareness by using the #BrainAneurysmAwarenessMonth tag on Facebook and Twitter, SHARING our banner (and daily updates), and using the banner as your profile image!  If you are a blogger, please feel free to use these images in your blog, to share with your readers information about Brain Aneurysms, or just to show your support for the movement! (You can find the banner images at the bottom of this post!)

The “folder” that we will be uploading all of our images and graphics for this month will be HERE, so you can easily find and share them on your own walls.

Every day, as much as possible, I am going to edit this post with a new fact, resource, or video about Brain Aneurysms, so keep a look out for updates every day!

Daily Graphics and Updates at

AVM Awareness Project on Facebook

Can you share with us how YOU are going to be “celebrating” Brain Aneurysm Awareness Month?

Burgundy for Life is a branch of the AVM Awareness Project, where I create and sell various hand-made and hand-designed products to spread Arteriovenous Malformation and Aneurysm Awareness.
In the past month and a half, I have been very busy designing and creating bracelets and wristbands for various causes (AVM/Aneurysm, Lupus, Your Cause, etc.).  We have also raised $50 for Ben’s Friends Patient Communities in the past month via the Ben’s Friends HOPE Bracelet sales (with 20 bracelets sold and shipped).  The HOPE Bracelets are the best sellers in the shop, and I make every one by hand, to whatever preferences the customers have.  In the past month and a half, I have sold almost 40 of them (given, 1/2 of that are Ben’s Friends HOPE Bracelets, which make them the most popular type).

Another product I have is the “Burgundy for Life” Wristband.  They are burgundy colored silicon awareness wristbands with the text, “Burgundy for Life” and “avmalformation.org“ embossed in them, along with 2 ribbons.  With 30 sold, we are almost able to pay it off, and whatever extra we can make over that can go into ordering more of them.
I also sell AVM & Aneurysm Awareness Stickers that I designed a few months ago. All in all, I have been quite busy, making bracelets, designing new ones, working, exercising (I need to get healthier and keep my recovery process forward!), and planning for the FIRST Mid-Atlantic AVM/Aneurysm Support Group meeting that is in less than a week.

Facebook Milestone: 290 Likes!

We reached 290 Likes yesterday, and today, we are at 291.  I didn’t expect to get to such a high number ever, and most certainly in not this short period of time.  I am overwhelmed daily by the amount of support I have been receiving for this project, and very thankful for everyone who has been contributing, whether just by visiting the AVM Awareness Project, Liking the Page, joining us in the Support Group, or purchasing a bracelet.

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Team Tucciarone is holding a benefit lunch and raffle event for their friend, Christine Tucciarone, on June 30th, in Liverpool New York. You can find out more information about the event, location, and how you can donate to help alleviate some of her medical expenses here: Team Tucciarone: Benefit for Christine.

If you are interested in helping, but cannot donate money, please LIKE their Facebook Page, and SHARE the event post we have posted on our Facebook Page!  That would be an enormous help in raising awareness for her benefit, as well as Arteriovenous Malformation!

The “Stories” section of the website houses brave journeys by survivors and their supporters, or of warriors who lost their lives to AVM/aneurysms despite their fights.
The section has a page dedicated to every individual, and we accept any kinds of “stories” ranging from narratives, poetry, an autobiographies, to videos, compositions, photography, and paintings. Anything that tells a STORY about you or your loved one’s journey with AVM/aneurysms is welcome!
For more information, please visit “Stories,” or e-mail [email protected]!

The “Offline” section houses a calendar, directory of regional support groups, list of upcoming events, a submission page for events and support groups, and a page dedicated to ways YOU can help spread awareness.

The calendar was set up by Melissa of Spookydot, and has a monthly calendar list of support group meetings, and when we have events listed, of the dates of events.  You can search via categories (events or support groups) when there are events to be listed, and when you click on the occasions in the calendar, it will take you to a page filled with information and maps to the location of the event/support group meeting.

Please submit your regional support groups and upcoming events related to AVM/aneurysms HERE!  We look forward to adding more and more to the directory!

We have also reorganized the Site Map so that it is much easier to navigate and use now.  If you are ever lost, give it a visit!

New links have been added to the link directory, and new articles for supporters.  There have been updated everywhere, and tweakings of pages as well, so be sure to check out all of the sections!

Also, I made a video for my graphic design class final project. 🙂 This was the first semester I started working with Photoshop, and I don’t think my professor will ever understand what tremendous difference she has made in my life and the network of amazing people I have created thanks to now using Photoshop and Illustrator to create Aneurysm/AVM Awareness related things!

http://inked.pw/videoavm

Welcome to the new and improved version of “AVM Awareness Project,” formally known as “Arteriovenous Malformation and Aneurysm Information & Link Directory,” or just as “AVMalformation.Org.”

We have new people, more content, and still enthusiasm to bring you information and resources about Arteriovenous Malformation and Aneurysms.  New with this update are the “Stories” section, where visitors are encouraged to share their stories and products with us to share with the other visitors, and “Offline,” where we will be having a calendar filled with regional support group meetings and events, as well as pages dedicated to listing regional support groups and various events, such as 5Ks and fundraisers.

Please visit #AneurysmAwareness Project for Aneurysm/AVM Awareness Stickers.
The upgrade in interface was made possible by generous donation of time and skills by Melissa of Spookydot.